Routnie. Mom loves routine. In the recent weeks I have found that routine is a big part of her life. Not only is routine apparent in her daily interactions. At this point I make contact with her daily to check in and check in on her day. The conversation is the same everyday. Today I went to ..., then I ate, after that I had a. Then we hang up. There is no two way communication and it is hard to converse about others. Mom is in her own world. Each week I know exactly what the week looks like as she does the same thing each week. The routine is predictable, and going off the routine is very difficult for her. She goes to church on certain days, laundry on different days, and appointments on other days. In these moments I am thankful that she has independence and has the ability to do things on her own. I know this is something that I will miss in the years to come.
One night I was curdled up on the couch one and Matt asked me what was wrong. I quickly told him I was sad. I was sad that my Mom was no longer able to do what she once was able to do. I was sad that no matter what I told my brother he still had an excuse of why and how he could not be an active partcipant in my Mom's care. I was sad that my SIL as a nurse was unwilling to speak or be of any assistance or support to my brother. I was sad that life was not suppose to be this way. I was lonely as my peers are not walking this road. I am tired and know the marathon will continue. He let me say all of my things, and then quickly told me I was not alone. That he was in this journey with me. Seventeen years ago we took the vow for better or worse. My family was his, and his was mine. In my tears I knew he spoke truth. Matt has stood in the gap. When I can no longer think of the next steps h...
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